The last year has been a mixed bag of ups and downs, including being kept at Birmingham with suspected rejection of the organs (thankfully not). Like all other transplant recipients Kian is now on anti-rejection medication for the rest of his life. He still has seizures which nobody can explain (again, not much research in these kinds of areas in children) and lots of other issues carried over from his pre-transplant days but we are winning the war!
Over the last few months, Kian has made huge leaps and is now a happy little 4 year old doing all the things that 4 year olds should be doing. All this is only possible thanks to the person who gave him his liver and kidney. We wrote to the deceased donor’s partner to thank him and show him just what that person has done for us and Kian – I hope he understood. That single donor saved Kian and another adult who received the other half of the liver (they can split a liver in half so it can be used for two recipients).
Hopefully you now understand why it is that we are asking you to sign up to the register. Even if things go well, Kian will almost certainly need another kidney transplant at some point in the future as transplanted kidneys do not last the life of the new recipient (yet another research area why this should be so and what can be done about it).
No large procedure is perfect, but transplantation has improved massively in terms of the success and survival rates over the last few decades, and maintaining that trend takes real effort. There is so much scope for improvement, and that’s where you come in. Please do something to help right now – do not put it off! Thank you for reading Kian’s story.