Most of you probably won’t realise that both liver & kidney diseases each affect more children in the UK than Leukaemia, yet they get relatively little media attention. I hope that by telling you about Kian’s story I will show you exactly why I need you to help out now.
Kian’s life was saved because somebody just like you took two minutes to register on the Organ Donor Register. Thank you for visiting, and please do leave your comments to say you visited.
Philip Barton – Kian’s Dad.
Part 1: A new baby boy!
Part 2: Did you not realise there was a problem?
Part 3: What happens when a child’s liver starts failing. Knock on effects.
Part 4: Renal failure. The reality of Dialysis for a small baby hits home.
Part 5: Things go downhill. Transplant.
Part 6: Climbing back up the hill.
Part 7: Now and the future.
12 April 2010, 8:52 pm
A warm welcome to our website that deals with the emotive issue of transplantation in children. We know Kian is not unique so if you have a story to tell please leave a comment or better still email us!
21 April 2010, 9:30 am
Thank you for this moving site and story. I wish you success with increasing sign-up to the donor registry! That would be a fantastic achievement!
21 April 2010, 10:16 pm
lovely website. I think Kian’s story is a great victory about what organ donation can do.
I know Kian’s. Seen him and his parents through good and bad days. Witnessed this family life style before the transplant: the feeding through a tube every three hours for over 2 years and going three times a week to hospital for dialysis. And I saw kian’s after the transplant, so different. He ate for the first time through his mouth few week after the transplant like he’s done it all his life. And the running, going out as he doesn’t have to be fed every 3 hours. He’s just looked at you and smiled like everything’s all right.
So if I can add a last thing, It’s :register because you never know who will need a transplant and it is really changing lives.
23 April 2010, 9:52 am
Just want to say you guys are amazing with what you have done for Kian and how far you have come. The website is a brill idea and I hope word gets around so more and more people are made aware.
26 May 2010, 10:30 pm
Phil, great site, a great way to disseminate the message, The difference in Kian since the transplant have been staggering. Congratulations on getting mentions on BBC’s website too, hope this help to raise awareness and numbers of people joining. Take care.
20 September 2010, 7:03 pm
lovely website. I think Kian’s story is a great victory about what organ donation can do.I know Kian’s. Seen him and his parents through good and bad days. Witnessed this family life style before the transplant: the feeding through a tube every three hours for over 2 years and going three times a week to hospital for dialysis. And I saw kian’s after the transplant, so different. He ate for the first time through his mouth few week after the transplant like he’s done it all his life. And the running, going out as he doesn’t have to be fed every 3 hours. He’s just looked at you and smiled like everything’s all right.So if I can add a last thing, It’s :register because you never know who will need a transplant and it is really changing lives.
+1